Primary Carnitine Deficiency

Parent Information
Star-G Carnitine transporter deficiency Fact Sheet
Genetics Home Reference Primary Carnitine Deficiency Fact Sheet
Baby's First Test

Family Support Information
Oklahoma Support
Oklahoma Family Network
Children and Youth with Special Health Care Needs
National Support
FOD Family Support Group
Genetic Alliance
Parent-to-Parent USA

Provider Information
ACT Sheet & Algorithm
Fact Sheet
Emergency Management Protocol
Decision Tree

If you have any questions please contact:

Integris Pediatric Specialty Clinic, Inborn Error of Metabolism (IEM) Clinic
Geneticist pager:  (405) 630-3794

OU Children’s Physicians – Genetics Clinic
Page Operator: (405) 271-3636

The Newborn Screening Program
Phone: (405) 271-6617 opt 2
Toll Free: (800) 766-2223 opt 2