Primary Carnitine Deficiency
Family Support Information
Oklahoma Support
Oklahoma Family Network
Children and Youth with Special Health Care Needs
National Support
FOD Family Support Group
Genetic Alliance
Parent-to-Parent USA
Provider Information
ACT Sheet & Algorithm
Fact Sheet
Emergency Management Protocol
Decision Tree
If you have any questions please contact:
Integris Pediatric Specialty Clinic, Inborn Error of Metabolism (IEM) Clinic
Geneticist pager: (405) 630-3794
OU Children’s Physicians – Genetics Clinic
Page Operator: (405) 271-3636
The Newborn Screening Program
Phone: (405) 271-6617 opt 2
Toll Free: (800) 766-2223 opt 2